~ Elizabeth
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About Me
- Elizabeth
- Columbia, MD
- Hi, I'm Elizabeth. In 5/05, my stepson Bradley Rice (Brad to his friends) was diagnosed with Ewing’s Sarcoma/primitive neuroectodermal tumour (ES/PNET), a rare and aggressive form of bone and soft tissue sarcoma. In 10 months, Bradley completed 9 of 14 recommended rounds of chemo, had most of 3 ribs removed and 30 rounds of radiation. When this treatment didn't produce remission, his medical options were extremely limited. There wasn't anything we could do that wasn't considered experimental. Even the experimental options would only prolong life, not cure him. We were stunned at the lack of progress made in the treatment and cure of sarcomas. Bradley passed away on March 21, 2006. My family now helps others who continue to battle. During my sabbatical, I'm devoting time to projects that help cancer patients and their families. This blog will follow the progress of this sabbatical.
The Chronology of Bradley's Treatment
For those of you who have come to this site to get an idea of what the general course of sarcoma treatment is like, from a caregiver perspective, a series of posts made in September 2007 may be useful. What you find there is essentially a write up based on the contents of my daytimer which I took to most appointments, the large desk calendar we used to keep the ever-changing schedule, posts to extremely helpful ACOR sarcoma support group and general observations. I didn't attempt to describe all that we were feeling and the challenges this presented for our family, of whom Bradley was the youngest. Maybe I can write about that someday, in a separate version, clearly labelled OT (Off Topic)!
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1 comment:
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